Preface ix

1. Globalisation of Chronic Illness Research 1
Sally Wellard

Introduction 1

What is in a name? 2

Global crisis in chronic illness 3

Impact of chronic illness in developing nations 4

Trends in chronic illness research in developed nations 6

Policy drivers: taking action 8

Global initiatives for future chronic illness management 10

Conclusion 12

References 12

2. Transitional Processes and Chronic Illness 17
Debbie Kralik and Antonia van Loon

Introduction 17

The search 18

Defining transition 19

An emerging understanding of transition 19

Describing transition 21

Transition and identity 22

Transition and transformative learning 24

Transitional processes 25

A transition framework for practice 26

Conclusion 32

References 33

3. Translating Chronic Illness Research Across the Lifespan 37
Marit Kirkevold

Introduction 37

Human development across the lifespan 39

Key assumptions of the lifespan developmental perspective 40

Human development in old age 42

Applications of lifespan developmental perspectives in chronic illness

research 46

Supporting age-appropriate development without jeopardising the safe

management of serious chronic disease: the case of cystic fibrosis 47

Chronic illness in old age: providing developmentally appropriate

integrity-promoting care to persons suffering from dementia 50

Conclusions and implications 52

References 53

4. Assisting People with Chronic Illness to Manage Co-Morbid Conditions 57
Allison Williams

Introduction 57

Conceptualising co-morbidity 58

Social determinants of co-morbidities 60

The medical paradigm 61

Health-care systems 65

Co-morbidity management 68

Models of chronic illness management 69

Conclusion 74

References 75

5. Conceptualisation of Self-Management 85
Malcolm Battersby, Sharon Lawn and Rene Pols

Introduction 85

Background to the use of the term self-management 86

Historical developments in self-management 88

Associated concepts or models that overlap with or inform

self-management 92

Alternative definitions of self-management 101

Conclusions: the future for chronic condition self-management 105

References 105

6. The Relevance of Self-Management Programmes for People with Chronic Disease at Risk for Disease-Related Complications 111
Barbara Paterson and Max Hopwood

Introduction 111

Background 112

Theoretical framework 114

Overview of relevant research 115

Sample 115

Participation 118

Attrition 118

Discussion 120

Conclusion 125

References 137

7. The Potential of Technology for Providing Social Support to People and Families 143
David B. Nicholas

Introduction 143

Background 143

The Internet as a health resource 144

Impact of advanced technology in fostering therapeutic gain:

overview of relevant research 146

Social support delivery: considerations in selecting advanced

technology methods 156

Into the virtual future... 157

References 158

8. Chronic Illness Research: Translating What We Know into What We Do 163
Renee F. Lyons, Lynn McIntyre, Grace Warner, Celeste Alvaro,Alastair Buchan, Ian Reckless and Alison Kitson

Introduction 163

The task ahead 164

The dose–response problem 166

The promise of research 168

Knowledge translation: emerging from na¨ıvete 170 ´

Embedding KT within research agencies and grants 173

Web-based KT innovations 174

What chronic illness research gets taken up? 174

Policy containers and the future of chronic illness 179

The future of chronic illness: systems change using stroke examples 181

Conclusion 189

References 191

9. Future Directions 199
Debbie Kralik

Global perspective 199

Facilitating the will of the people 200

The evidence base 201

Technology and health promotion 201

Transition 202

Self-management and self-care 203

Health in the community 203

References 204

Index 205