Secondary Findings in Genomic Research

A thorough, highly accessible resource on interpreting, managing and disclosing secondary findings from genomic research

Martin Langanke (Volume editor), Pia Erdmann (Volume editor), Kyle B. Brothers (Volume editor)

9780128165492

Paperback, published 4 March 2020

244 pages, 40 illustrations (10 in full color)
23.4 x 19 x 1.6 cm, 0.43 kg

Approx.218 pages

1. Concept, history, and state of debate
2. Oversight, governance, and policy for making decisions about return of individual genomic findings
3. Selecting secondary findings to report: Creating a list that suits your study
4. How secondary findings are made
5. Informed consent and decision-making
6. Reporting of secondary findings in genomic research: Stakeholders’ attitudes and preferences
7. Disclosing genomic sequencing results
8. Implications of secondary findings for clinical contexts
9. Secondary findings: Building a bridge to the future of ELSI

Subject Areas: DNA & Genome [PSAK1], Genetics [non-medical PSAK]