Responsible Genomic Data Sharing
Challenges and Approaches

Fully examines the policy and technical aspects of genomic data sharing in research and clinical practice, presenting illustrative case studies

Xiaoqian Jiang (Edited by), Haixu Tang (Edited by)

9780128161975

Paperback, published 17 March 2020

210 pages
23.4 x 19 x 1.5 cm, 0.43 kg

Responsible Genomic Data Sharing: Challenges and Approaches brings together international experts in genomics research, bioinformatics and digital security who analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia.

Section I: Privacy Challenges in Genomic Data Sharing 1. Criticality of Data Sharing in Genomic Research & Public views of genomic data sharing Gamze Gursoy 2. Genomic data access policy models Stephanie Dyke 3. Information leaks in aggregate genomic data, inference attacks Erman Ayday 4. Genealogical search using whole genome genotype profiles Yuan Wei, Ryan Lewis, Ardalan Naseri, Shaojie Zhang, Degui Zhi

Subject Areas: DNA & Genome [PSAK1], Genetics [non-medical PSAK]