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Children and Youth with Complex Cerebral Palsy
Care and Management
Laurie Glader (Edited by), Richard Stevenson (Edited by)
9781909962989, Wiley
Paperback / softback, published 28 December 2018
404 pages
23.9 x 17 x 1.8 cm, 0.771 kg
Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
Author Appointments Acknowledgements Preface Opening Quote 1. Overview and Introduction 2. Functional Assessment and Goals of Management 3. Hypertonia 4. Musculoskeletal/Orthopedic Management 5. Seating, Mobility, and Equipment Needs 6. Osteoporosis and Fractures 7. Feeding and Nutrition 8. Gastrointestinal Issues 9. Overview of Pulmonary and Sleep Disorders in Children with Complex Cerebral Palsy 10. Speech and Communication 11. Cognitive and Sensory Impairment 12.Challenging Behaviors, Sleep and Toileting 13. Mental health in Children and Adolescents with Cerebral Palsy 14. Pain and Irritability 15. Seizures and Epilepsy in Children with Cerebral Palsy 16. Urologic Issues 17. Adolescence and Sexuality 18. Transition to Adulthood 19. Evidence Based Care: A Tool Chest for Helping Families Navigate Treatment Options 20. Difficult Topics and Decision Making 21. Through the Eyes of Parents 22. Growing up, Growing Well with Cerebral Palsy Appendix: Care Tools for Clinical Practice
Richard Stevenson and Laurie Glader
Jilda N Vargus-Adams and Andrea L Paulson
Darcy Fehlings, Anne Kawamura, Cecilia Lee and Amber Makino
Mark J Romness and Victor Anciano
Christopher D Lunsford and Jonathan Greenwood
Steven J Bachrach and Heidi H Kecskemethy
Valentina Intagliata, Eva Delaney and Mary C Bickley
Beate Beinvogl and Munir Mobassaleh
Umakanth Katwa and Sebastian K Welsh
John M Costello and Elizabeth N Rose
Katheryn F Frazier
Alisa Bahl and Kurt A Freeman
Kerim M Munir and Ikram Rustamov
Julie Hauer
John R Mytinger and Howard P Goodkin
Stuart Bauer
Susan Hayden Gray
Kitty O'Hare and Claudio Melo de Gusmao
Lisa Samson-Fang
Jim Plews-Ogan and Richard I Grossberg
Michele Shusterman, Carol Shrader and Jennifer Lyman
Andrew J Smith, Chelsea Strawser, Benjamin Schrader, Jaylan Norfleet and Garey Noritz
Subject Areas: Other branches of medicine [MM]
