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Autism in Nursing and Healthcare
Christopher Barber (Author)
9781394266104, Wiley
Paperback / softback, published 10 July 2025
240 pages
24.1 x 16.8 x 1.6 cm, 0.454 kg
Understand the healthcare needs of autistic patients with this essential volume Autism is a condition that directly affects as many as 2 million people in the United Kingdom, a figure which does not include family members and other loved ones. As most nurses, healthcare assistants, and other healthcare professionals will engage with autistic patients or service users at numerous points in their careers, the Health and Care Act 2022 requires healthcare professionals to be given autism training appropriate to their role. There is an urgent need for a publication which directly addresses this new training requirement and fulfills the learning needs of workers across the healthcare sector and beyond. Autism in Nursing and Healthcare offers a solid grounding in the issues relevant to the care and support of autistic people. Viewing autism as a lifelong condition, this book offers chapters covering the full lifespan of the autistic person, with information on the role of nurses in both community and hospital settings. Appropriate for both formal and informal carers, it’s an indispensable resource for anyone with direct or indirect experience of autism. Autism in Nursing and Healthcare is ideal for pre-registration nursing students from all four nursing branches, those in post-registration professional development sessions, Nursing Associates and Healthcare Assistants, as well as those who work with autistic people (either as patients or colleagues) looking to better understand autism.
Preface xiii Acknowledgements xiv Chapter 1 Introduction 1 Purpose 2 Aims and Objectives 3 Chapter Overview 4 Conclusion 7 Key Points 7 Questions and Reflections 7 References 8 Chapter 2 What Is Autism? 9 Introduction 9 What Autism Is Not 10 What Is Autism? 10 Autism Myths 12 Autistic Prevalence 13 Mind Your Language 14 Conclusion 15 Key Points 15 Questions and Reflections 16 References 16 Chapter 3 A History of Autism 17 Introduction 17 Pre-History 18 History 19 Post-History 23 Conclusion 24 Key Points 25 Questions and Reflections 25 References 25 Chapter 4 Autism in Girls and Women 27 Introduction 27 Prevalence 27 Why the Difference? 28 Experiences of Girls 29 Experiences of Women 30 How You Can Help 30 Conclusion 32 Key Points 33 Questions and Reflections 33 References 33 Chapter 5 Diagnostic Issues 35 Introduction 35 Current Diagnostic Criteria 36 Diagnostic Pathways 37 Diagnostic Tools 39 How You Can Help 40 Autism Diagnosis and Me 42 Conclusion 43 Key Points 43 Questions and Reflections 44 References 44 Chapter 6 Autism and Communication 46 Introduction 46 What Is Communication? 47 How Do Autistic People Communicate? 48 Communication Assessment Tools 50 How You Can Help Autistic People Communicate 51 Conclusion 53 Key Points 53 Questions and Reflections 53 References 54 Chapter 7 Autism and Sensory Issues 56 Introduction 57 What are Sensory Stimuli? 57 Sensory Impact in Those with an ASC 58 Sight 59 Hearing 59 Smell 60 Taste 60 Touch 61 Balance 62 Pain and Temperature 62 Impact on Nursing Interventions 63 Sight 64 Hearing 64 Smell 64 Taste 64 Touch 65 Balance 65 Pain and Temperature 65 Conclusion 65 Key Points 66 Reflective Questions 66 References 66 Chapter 8 Autistic Children (0–11) 67 Introduction 67 Diagnosis 67 Preschool 68 Primary School 70 Transitions 71 Conclusion 73 Key Points 73 Questions and Reflections 73 References 74 Chapter 9 Autistic Adolescents (11–20) 75 Introduction 75 What Is Adolescence? 75 Autism and Secondary Education 77 Adolescents and Health 78 Autism and Healthy Lifestyles 79 Transitions 81 Conclusion 82 Key Points 82 Questions and Reflections 82 References 83 Chapter 10 Autistic Adults 84 Introduction 84 Autistic Adults: 20–50 84 Autistic Adults: 50–70 89 Autistic Adults: 70+ 90 Conclusion 91 Key Points 91 Questions and Reflections 92 References 92 Chapter 11 Mental Health Issues and Autism 93 Introduction 93 What Is Mental Health? 93 Mental Health and Autism 95 Statistics 95 Causes 96 Helpful Interventions 97 Conclusion 99 Key Points 100 Questions and Reflections 100 References 100 Chapter 12 Physical Health Issues and Autism 103 Introduction 103 Autism and Physical Health 103 GP Practices and Community Health Centres 105 Dentists 105 A&E Departments 106 Outpatient Departments 107 On the Wards 108 Conclusions 109 Key Points 110 Questions and Reflections 110 References 110 Chapter 13 Person- Centred Planning, Interventions and Care 112 Introduction 112 What Is Person- Centred Planning and Care? 113 Twelve Activities of Daily Living 114 Maintaining a Safe Environment 116 Breathing 117 Mobilising 117 Communication 117 Eating and Drinking 118 Elimination 118 Washing and Dressing 118 Controlling Temperature 118 Working and Playing 119 Expressing Sexuality 119 Sleeping 119 Death 120 Conclusion 120 Key Points 120 Questions and Reflections 121 References 121 Chapter 14 Reasonable Adjustments 123 Introduction 123 What Are ‘Reasonable Adjustments’? 124 Reasonable Adjustments and the Autistic Patient 126 Practical Examples of Reasonable Adjustments 128 Conclusion 129 Key Points 129 Reflective Questions 130 References 130 Chapter 15 Nursing Interventions for Independent Adults 131 Introduction 131 What Do We Mean By Independent? 131 The Independent Autistic Person in a Hospital Environment 133 The Independent Autistic Person in a Community Environment 135 Conclusion 136 Key Points 137 Reflective Questions 137 References 137 Chapter 16 Nursing Interventions for Informal Carers 139 Introduction 139 What Is an Informal Carer? 140 Informal Carer Statistics 141 Informal Caring and the Autistic Child 142 Informal Caring and the Autistic Adult 143 The Autistic Person as Informal Carer 144 Informal Caring: The Role of the Nurse 145 Conclusion 146 Key Points 147 Reflective Questions 147 References 147 Resources 148 Chapter 17 Autism, Spirituality and Sexuality 149 Introduction 149 Spirituality 150 What Is Spirituality? 150 Autism and Spirituality 150 Sexuality 152 What Is Sexuality 152 Autism and Sexuality 153 Conclusion 155 Key Points 155 Reflective Questions 155 References 155 Chapter 18 The Autistic Colleague 157 Introduction 157 Prevalence of Autistic Colleagues 158 Lived Experiences of Autistic Colleagues 158 Reasonable Adjustments 159 Supporting Autistic Colleagues 161 Conclusion 163 Key Points 163 Reflective Questions 163 References 164 Chapter 19 Autism and Welfare Benefits 165 Introduction 165 Debates Around Welfare Benefits 165 Disability Living Allowance 166 What Is It? 166 What Is It Worth? 167 Claiming Criteria 167 How To Claim 167 Personal Independence Payment 167 What Is It? 167 What Is It Worth? 167 Claiming Criteria 168 How To Claim 168 Job Seekers Allowance 168 What Is It? 168 What Is It Worth? 169 Claiming Criteria 169 How To Claim 169 Carers Allowance 169 What Is It? 169 What Is It Worth? 170 Claiming Criteria 170 How To Claim 170 Attendance Allowance 170 What Is It? 170 What Is It Worth? 170 Claiming Criteria 171 How To Claim 171 Employment and Support Allowance 171 What Is It? 171 What Is It Worth? 171 Claiming Criteria 172 How To Claim 172 Universal Credit 172 What Is It? 172 What Is It Worth? 172 Claiming Criteria 172 How To Claim 173 Notes on the Role of the Nurse 173 Conclusion 174 Key Points 174 Reflective Questions 174 References 175 Chapter 20 Autism Discrimination 176 Introduction 176 What Is Discrimination? 177 Discrimination in Law 177 Disability Discrimination 178 Discrimination in Education 179 Discrimination in Health Care 180 Discrimination in the Workplace 181 Role of the Nurse 182 Conclusion 183 Key Points 184 Reflective Questions 184 References 184 Chapter 21 The Autism Act 2009 and Autism Strategies 187 Introduction 187 Autism Act (2009) 187 Autism Strategy (2010) 189 Autism Strategy 2023 191 Implications for Healthcare Practice 192 Autism (Early Identification) Bill (2024) 193 Conclusion 194 Key Points 194 Reflective Questions 195 References 195 Chapter 22 Decision- Making and Consent 197 Introduction 197 What Is Consent? 198 The Mental Capacity Act (2005) 199 Autism, Mental Capacity and Consent 201 The Role of the Nurse 202 Conclusion 203 Key Points 203 Reflective Questions 203 References 204 Chapter 23 Autism: An Anarchy Too Far? 205 Introduction 205 What Is Meant By Anarchy? 205 Autism as Anarchy? 206 Using Language 207 Looking Back 208 Looking Forward 209 Call to Action 209 Conclusion 210 Key Points 210 Reflective Questions 211 References 211 Glossary 213 Index 218
1910–194019
1940–196019
1960–198020
1980–200021
2000–Today22
Subject Areas: Nursing & ancillary services [MQ]
