{"product_id":"testing-baby-the-transformation-of-newborn-screening-parenting-and-policymaking-paperback-softback-9780813551364","title":"Testing Baby; The Transformation of Newborn Screening, Parenting, and Policymaking (Paperback \/ softback) 9780813551364","description":"\u003cfont face=\"Georgia\"\u003e\r\n\u003cp\u003e\u003cfont size=\"6\"\u003eTesting Baby\u003c\/font\u003e\u003cbr\u003e\r\n\u003cfont size=\"5\"\u003eThe Transformation of Newborn Screening, Parenting, and Policymaking\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\r\n\r\n\u003cp\u003e\u003cfont size=\"4\"\u003eRachel Grob (Author)\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e9780813551364\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003ePaperback \/ softback, published 1 September 2011\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e290 pages, 20 images\u003cbr\u003e22.9 x 15.2 x 2.3 cm, 0.454 kg\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\r\n\u003cp align=\"justify\"\u003e\u003cem\u003e\u003cfont size=\"3\"\u003e\u003cdiv\u003e\"Gripping, tragic, cogent, emotional, and haunting, reading through these narrative accounts and Grob's interpretation of them achieves the effect of great sociological monographs.\"\u003cbr\u003e\n\u003c\/div\u003e (Contemporary Sociology) \u003cdiv\u003e\"Newborn screening is a most interesting area that impacts each and every individual in countless ways. In this truly inspiring work, Grob has captured what others have not been able to write about the topic. Essential.\"\u003cbr\u003e\n\u003c\/div\u003e (Choice) \u003cdiv\u003e\u003cp\u003e\u003ci\u003e\"Testing Baby\u003c\/i\u003e does what sociology is meant to do-transform our understanding of everyday life, connect the personal to the structural, and challenge our thinking.  A rare accomplishment\"\u003c\/p\u003e\u003c\/div\u003e - Barbara Katz Rothman (City University of New York) \u003cdiv\u003e\"\u003ci\u003eTesting Baby \u003c\/i\u003eis an excellent book for medical professionals-including physicians, social workers, and genetic researchers-as well as policymakers. A relevant and important contribution that sits at the interface of medical science, reproduction, and parenthood, Grob’s work will provoke further reflection regarding the future role of technology and genetic information for the human experience.\"\u003cbr\u003e\n\u003c\/div\u003e (World Medical and Health Policy) \u003cdiv\u003e\"Grob provokes the reader to think deeply about a taken-for-granted aspect of the medicalization of reproduction in the United States.\"\u003c\/div\u003e - Rayna Rapp, PhD. (Testing Women, Testing the Fetus: the Social Impact of Amniocentesis in America) \u003cdiv\u003e\"Her accessible, \u003ci\u003eTesting Baby\u003c\/i\u003e,...may be the start of a differenc kind of policy conversation.\"\u003cbr\u003e\n\u003c\/div\u003e (Health Affairs) \u003cdiv\u003e\"Rachel Grob's timely and insightful analysis explores how families actually experience newborn screening. It will be read with profit by anyone interested in issues raised by medical screening programs generally.\"\u003c\/div\u003e - Diane B. Paul (The Politics of Heredity: Essays on Eugenics, Biomedicine, and the Nature-Nurtur)\u003c\/font\u003e\u003c\/em\u003e\u003c\/p\u003e\r\n\r\n\u003cp align=\"justify\"\u003e\u003cstrong\u003e\u003cfont size=\"3\"\u003e\u003cdiv\u003e\u003cdiv\u003e\n\u003cp\u003eWithin forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also \u003ci\u003echanged\u003c\/i\u003e by it in ways not yet recognized.\u003c\/p\u003e\n\u003cp\u003e\u003ci\u003eTesting Baby \u003c\/i\u003eis the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates.\u003c\/p\u003e\n\u003c\/div\u003e\u003c\/div\u003e\u003c\/font\u003e\u003c\/strong\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e\u003cdiv\u003eAcknowledgments\u003cbr\u003e\u003cbr\u003e Chapter 1. Saving Babies, Changing Lives\u003cbr\u003e Chapter 2. Diagnostic Odysseys, Old and New: How Newbord Screening Transforms Parents' Encounters with Disease\u003cbr\u003e Chapter 3. Specters in the Room: Parenting in the Shadow of Cystic Fibrosis\u003cbr\u003e Chapter 4. Encounters with Expertise: Parents and Health Care Professionals \u003cbr\u003e Chapter 5. A House on Fire: How Private Experiences Ignite Public Voices\u003cbr\u003e Chapter 6. Brave New Worlds: Visible in a Single Drop of Blood?\u003cbr\u003e\u003cbr\u003e Notes \u003cbr\u003e References\u003cbr\u003e Index\u003cbr\u003e  \u003c\/div\u003e\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\r\n\r\n\u003c\/font\u003e","brand":"Rutgers University Press","offers":[{"title":"Brand New","offer_id":52559300034840,"sku":"9780813551364","price":26.25,"currency_code":"GBP","in_stock":true}],"url":"https:\/\/freshlyprintedbooks.co.uk\/products\/testing-baby-the-transformation-of-newborn-screening-parenting-and-policymaking-paperback-softback-9780813551364","provider":"Freshly Printed Books","version":"1.0","type":"link"}