{"product_id":"spina-bifida-understanding-and-managing-the-condition-across-the-lifespan-a-practical-guide-for-families-paperback-softback-9781952181238","title":"Spina Bifida: Understanding and Managing the Condition across the Lifespan; A Practical Guide for Families (Paperback \/ softback) 9781952181238","description":"\u003cfont face=\"Georgia\"\u003e\r\n\u003cp\u003e\u003cfont size=\"6\"\u003eSpina Bifida: Understanding and Managing the Condition across the Lifespan\u003c\/font\u003e\u003cbr\u003e\r\n\u003cfont size=\"5\"\u003eA Practical Guide for Families\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\r\n\r\n\u003cp\u003e\u003cfont size=\"4\"\u003eKelly Cho (Author), Cheryl Tveit (Author), Rachelle Lavalier (Author), Lily Collison (Edited by), Linda E. Krach (Edited by), Tom F. Novacheck (Edited by)\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e9781952181238, Wiley\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003ePaperback \/ softback, published 24 April 2026\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e574 pages\u003cbr\u003e24.4 x 17 x 3.6 cm, 1.202 kg\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\r\n\r\n\r\n\u003cp align=\"justify\"\u003e\u003cstrong\u003e\u003cfont size=\"3\"\u003e\u003cp\u003e\u003cb\u003eSpina Bifida breaks down the medical complexity of the condition into a clear, lifelong roadmap, combining world-class clinical expertise with lived experiences to empower all those involved from diagnosis to adulthood.\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003eWhether you are an individual navigating your own care, a parent or family member supporting a loved one, or a healthcare professional looking for a broader perspective, this practical guide offers the expert-backed clarity needed to manage spina bifida with confidence.\u003c\/p\u003e \u003cp\u003eKey features:\u003c\/p\u003e \u003cul\u003e \u003cli\u003e\n\u003cb\u003eClinical excellence:\u003c\/b\u003e Delivers detailed medical insights and best-practice evidence-based treatment options.\u003c\/li\u003e \u003cli\u003e\n\u003cb\u003eHolistic perspective:\u003c\/b\u003e Explores how spina bifida impacts development, participation, and overall quality of life.\u003c\/li\u003e \u003cli\u003e\n\u003cb\u003eLifelong focus:\u003c\/b\u003e Provides tailored guidance that evolves alongside the needs of children, adolescents, and adults.\u003c\/li\u003e \u003cli\u003e\n\u003cb\u003eEmpowered outcomes:\u003c\/b\u003e Equips families with the tools and confidence to partner effectively with healthcare teams for optimal long-term health.\u003c\/li\u003e \u003c\/ul\u003e \u003cp\u003eThe \u003ci\u003eGillette Children's Healthcare Series\u003c\/i\u003e distills medical complexity into clear, actionable roadmaps for childhood-acquired physical and neurological conditions. By bridging the gap between clinical research and daily reality, this definitive collection provides a vital guide for those living with a lifelong condition.\u003c\/p\u003e \u003cp\u003eWhether you are an individual navigating your own health journey, a parent or family member supporting a loved one, or a healthcare professional seeking a broader multidisciplinary perspective, this series provides the expert-backed clarity needed to manage the condition with confidence.\u003c\/p\u003e \u003cp\u003eCo-published by Mac Keith Press and Gillette Children's Healthcare Press, the series is built on a foundation of collaborative expertise. Every book combines evidence-based, best-practice treatments led by medical specialists with the invaluable lived experiences of individuals and families.\u003c\/p\u003e\u003c\/font\u003e\u003c\/strong\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e\u003cp\u003eAuthor and Editors\u003cbr\u003eSeries Foreword\u003cbr\u003eSeries Introduction\u003c\/p\u003e \u003cp\u003e\u003cb\u003e1. Neural tube defects and the central nervous system\u003c\/b\u003e\u003cbr\u003e1.1. Introduction\u003cbr\u003e1.2. Prevalence and risk factors\u003cbr\u003e1.3. Diagnosis\u003cbr\u003e1.4. Embryology and neural tube defects\u003cbr\u003e1.5. Anatomy and function of the central nervous system (\u003ci\u003eTeresa Schultz APRN, CNP-Pediatrics\u003c\/i\u003e)\u003c\/p\u003e \u003cp\u003e\u003cb\u003e2. An overview of spina bifida\u003c\/b\u003e\u003cbr\u003e2.1. Introduction\u003cbr\u003e2.2. Impact of spina bifida on the spine, spinal cord, and brain (\u003ci\u003eTeresa Schultz, APRN CNP-Pediatrics\u003c\/i\u003e)\u003ci\u003e\u003cbr\u003e\u003c\/i\u003e2.3. Types of spina bifida\u003cbr\u003e2.4. Prognosis\u003cbr\u003e2.5. Functional ability\u003cbr\u003e2.6. Associated conditions\u003c\/p\u003e \u003cp\u003e\u003cb\u003e3. Spina bifida in the prenatal to newborn stage\u003c\/b\u003e\u003cbr\u003e3.1. Introduction\u003cbr\u003e3.2. Prenatal counseling\u003cbr\u003e3.3. Prenatal and postnatal surgery\u003cbr\u003e3.4. Pregnancy and birth considerations\u003cbr\u003e3.5. The newborn with spina bifida: care and considerations\u003c\/p\u003e \u003cp\u003e\u003cb\u003e4. Anatomy and function\u003c\/b\u003e\u003cbr\u003e4.1. Introduction\u003cbr\u003e4.2. The bowel (\u003ci\u003eLiza Beilke May, DNP, APRN, CPNP-PC\u003c\/i\u003e)\u003cbr\u003e4.3. The bladder (\u003ci\u003eLiza Beilke May, DNP, APRN, CPNP-PC\u003c\/i\u003e)\u003cbr\u003e4.4. The reproductive system\u003cbr\u003e4.5. The musculoskeletal system (\u003ci\u003eKyleen Kriha, PT\u003c\/i\u003e)\u003c\/p\u003e \u003cp\u003e\u003cb\u003e5. Management of spina bifida: An overview\u003c\/b\u003e\u003cbr\u003e5.1. Introduction\u003cbr\u003e5.2. Best practice for spina bifida\u003cbr\u003e5.3. Getting the most out of appointments\u003cbr\u003e5.4. Overall management\u003cbr\u003e5.5. Nutrition\u003cbr\u003e5.6. Mobility\u003cbr\u003e5.7. Exercise and physical activity (\u003ci\u003eKaitlin Lewis, CTRS\u003c\/i\u003e)\u003c\/p\u003e \u003cp\u003e\u003cb\u003e6. Neurological conditions and their management\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eTeresa Schultz, APRN, CNP-Pediatrics\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e6.1. Introduction\u003cbr\u003e6.2. Hydrocephalus\u003cbr\u003e6.3. Chiari malformation type II\u003cbr\u003e6.4. Syrinx\u003cbr\u003e6.5. Tethered cord\u003cbr\u003e6.6. Seizures and epilepsy\u003cbr\u003e6.7. Management of neurological conditions\u003c\/p\u003e \u003cp\u003e\u003cb\u003e7. Neurogenic bowel and bladder\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eLiza Beilke May, DNP, APRN, CPNP-PC, Alonso Carrasco, MD, Jenna Katorski, APRN, CNP, Katherine Nelson, DNP, APRN, CNP, and David Vandersteen, MD\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e7.1. Introduction\u003cbr\u003e7.2. Neurogenic bowel\u003cbr\u003e7.3. Neurogenic bladder\u003c\/p\u003e \u003cp\u003e\u003cb\u003e8. Management of neurogenic bowel\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eLiza Beilke May, DNP, APRN, CPNP-PC, Alonso Carrasco, MD, Jenna Katorski, APRN, CNP, Katherine Nelson, DNP, APRN, CNP, and David Vandersteen, MD\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e8.1. Introduction\u003cbr\u003e8.2. Bowel health: program, equipment, and cleanout\u003cbr\u003e8.3. Neurogenic bowel management\u003cbr\u003e8.4. Bowel-related complications\u003c\/p\u003e \u003cp\u003e\u003cb\u003e9. Management of neurogenic bladder\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eLiza Beilke May, DNP, APRN, CPNP-PC, Alonso Carrasco, MD, Jenna Katorski, APRN, CNP, Katherine Nelson, DNP, APRN, CNP, and David Vandersteen, MD\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e9.1. Introduction\u003cbr\u003e9.2. Neurogenic bladder management\u003cbr\u003e9.3. Bladder management evaluation\u003cbr\u003e9.4. Urinary system complications\u003c\/p\u003e \u003cp\u003e\u003cb\u003e10. Reproductive system conditions and their management\u003c\/b\u003e\u003cbr\u003e10.1. Introduction\u003cbr\u003e10.2. Conditions of the reproductive system\u003cbr\u003e10.3. Management of conditions of the reproductive system\u003c\/p\u003e \u003cp\u003e\u003cb\u003e11. Musculoskeletal conditions\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eStephen England, MD, Megan Haselbauer, PA-C, and Kyle Miller, MD\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e11.1. Introduction\u003cbr\u003e11.2. Bone, joint, and muscle conditions\u003cbr\u003e11.3. Lower extremity conditions\u003cbr\u003e11.4. Hip and spine conditions\u003cbr\u003e11.5. Upper extremity conditions\u003cbr\u003e11.6. Short stature\u003c\/p\u003e \u003cp\u003e\u003cb\u003e12. Management of musculoskeletal conditions\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eStephen England, MD, Megan Haselbauer, PA-C, and Kyle Miller, MD\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e12.1. Introduction\u003cbr\u003e12.2. Physical therapy (\u003ci\u003eKyleen Kriha PT\u003c\/i\u003e)\u003cbr\u003e12.3. Assistive technology (\u003ci\u003eJoseph Berdan, ATP, Danielle Harding, PA-C, Kyleen Kriha, PT, Kaitlin Lewis, CTRS, and Kathryn Pimentel, MPO, CPO\u003c\/i\u003e)\u003cbr\u003e12.4. Medical management, casting, and orthopedic surgery\u003c\/p\u003e \u003cp\u003e\u003cb\u003e13. Skin Conditions and their management\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eJoseph Berdan, ATP, and Jennifer Wilhelmy, CWCN, APRN, CNP\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e13.1. Introduction\u003cbr\u003e13.2. Insensate skin\u003cbr\u003e13.3. Skin breakdown and wounds\u003cbr\u003e13.4. Pressure injuries and pressure injury prevention\u003cbr\u003e13.5. Wound management\u003cbr\u003e13.6. Wound complications\u003c\/p\u003e \u003cp\u003e\u003cb\u003e14. Other physical conditions and their management\u003c\/b\u003e\u003cbr\u003e14.1. Introduction\u003cbr\u003e14.2. Obesity\u003cbr\u003e14.3. Metabolic syndrome\u003cbr\u003e14.4. Lymphedema\u003cbr\u003e14.5. Sleep-related breathing disorders (\u003ci\u003eJohn Garcia, MD\u003c\/i\u003e)\u003cbr\u003e14.6. Pain\u003cbr\u003e14.7. Latex allergy\u003cbr\u003e14.8. Eye conditions\u003c\/p\u003e \u003cp\u003e\u003cb\u003e15. Neuropsychological and mental health conditions and their management\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eRichard DiPrima, PsyD, LP, Margaret Grace, PhD, LP, Erin Ingvalson, MS, CCC, SLP, and Candice Johnson, OTD, OTR\/L\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e15.1 Introduction\u003cbr\u003e15.2 Neuropsychological conditions and testing, and neurocognitive profile\u003cbr\u003e15.3 Management of neuropsychological conditions\u003cbr\u003e15.4 Mental health conditions and their management\u003c\/p\u003e \u003cp\u003e\u003cb\u003e16. Community integration, education, independence, and transition to adult health care\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eTori Bahr, MD, and Giancarlo Perez-Albela, MD\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e16.1. Introduction\u003cbr\u003e16.2. Community integration\u003cbr\u003e16.3. Education\u003cbr\u003e16.4. Adaptive driving\u003cbr\u003e16.5. Independence\u003cbr\u003e16.6. Transition to adulthood and adult health care\u003c\/p\u003e \u003cp\u003e\u003cb\u003e17. Adulthood\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eJenna Katorski, APRN, CNP, Katherine Nelson, DNP, APRN, and Giancarlo Perez-Albela, MD CNP\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003e17.1. Introduction\u003cbr\u003e17.2. Aging in the typical population\u003cbr\u003e17.3. Aging with spina bifida\u003cbr\u003e17.4. Management of spina bifida in adulthood\u003cbr\u003e17.5. Employment\u003cbr\u003e17.6. Family planning, pregnancy, and parenting\u003c\/p\u003e \u003cp\u003e\u003cb\u003e18. Living with spina bifida\u003c\/b\u003e\u003c\/p\u003e \u003cp\u003e\u003cb\u003e19. Further reading and research\u003c\/b\u003e\u003cbr\u003e\u003ci\u003eElizabeth R. Boyer, PhD\u003c\/i\u003e\u003c\/p\u003e \u003cp\u003eAcknowledgments Appendices (Online)\u003c\/p\u003e \u003cp\u003eAppendix 1: Neurons (nerve cells)\u003cbr\u003eAppendix 2: Multidisciplinary team members and their roles Appendix 3: Epilepsy management\u003cbr\u003eAppendix 4: Gait analysis\u003cbr\u003eAppendix 5: Transfer aids and vehicle transportation Appendix 6: Noninvasive assisted ventilation\u003c\/p\u003e \u003cp\u003eGlossary\u003cbr\u003eReferences\u003cbr\u003eIndex\u003c\/p\u003e\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003eSubject Areas: Other branches of medicine [\u003ca title=\"See our other books on Other branches of medicine\" href=\"https:\/\/freshlyprintedbooks.co.uk\/search?q=%22Other%20branches%20of%20medicine%20%5BMM%5D%22\"\u003eMM\u003c\/a\u003e]\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\u003c\/font\u003e","brand":"Gillette Children's Healthcare P","offers":[{"title":"Brand New","offer_id":52449446166808,"sku":"9781952181238","price":42.59,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0730\/2037\/5320\/files\/9781952181238.jpg?v=1785199624","url":"https:\/\/freshlyprintedbooks.co.uk\/products\/spina-bifida-understanding-and-managing-the-condition-across-the-lifespan-a-practical-guide-for-families-paperback-softback-9781952181238","provider":"Freshly Printed Books","version":"1.0","type":"link"}