{"product_id":"sharing-linked-data-for-health-research-toward-better-decision-making-hardback-9781108426640","title":"Sharing Linked Data for Health Research; Toward Better Decision Making (Hardback) 9781108426640","description":"\u003cfont face=\"Georgia\"\u003e\r\n\u003cp\u003e\u003cfont size=\"6\"\u003eSharing Linked Data for Health Research\u003c\/font\u003e\u003cbr\u003e\r\n\u003cfont size=\"5\"\u003eToward Better Decision Making\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cem\u003eA practical guide to reform of the regulatory environment for access to government held data for research.\u003c\/em\u003e\u003c\/p\u003e\r\n\r\n\r\n\u003cp\u003e\u003cfont size=\"4\"\u003eCarolyn Adams (Author), Judy Allen (Author), Felicity Flack (Author)\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e9781108426640, Cambridge University Press\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003eHardback, published 9 June 2022\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e300 pages\u003cbr\u003e23.5 x 15.7 x 2.1 cm, 0.55 kg\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\r\n\u003cp align=\"justify\"\u003e\u003cem\u003e\u003cfont size=\"3\"\u003e'This excellent monograph explains how linked personal data can be safely used to answer important health questions. Future decisions about data sharing, requiring legal authorisation as well as independent ethical review, should be timely, transparent and based on clear and consistent criteria.' John D. Mathews, Professorial Fellow, University of Melbourne\u003c\/font\u003e\u003c\/em\u003e\u003c\/p\u003e\r\n\r\n\u003cp align=\"justify\"\u003e\u003cstrong\u003e\u003cfont size=\"3\"\u003eHealth research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address “wicked problems” in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.\u003c\/font\u003e\u003c\/strong\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003ePart I. Context for decision making\u003cbr\u003e 1. Research using linked data\u003cbr\u003e 2. Individual, collective, and public interests\u003cbr\u003e 3. Social licence\u003cbr\u003e Part II. Frameworks for decision making\u003cbr\u003e 4. Human rights\u003cbr\u003e 5. Research ethics\u003cbr\u003e 6. Law\u003cbr\u003e Part III. Practice and process of decision making\u003cbr\u003e 7. Existing practice and processes\u003cbr\u003e 8. Better practice and processes.\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003eSubject Areas: Forensic medicine [\u003ca title=\"See our other books on Forensic medicine\" href=\"https:\/\/freshlyprintedbooks.co.uk\/search?q=%22Forensic%20medicine%20%5BMMQ%5D%22\"\u003eMMQ\u003c\/a\u003e], Medical ethics \u0026amp; professional conduct [\u003ca title=\"See our other books on Medical ethics \u0026amp; professional conduct\" href=\"https:\/\/freshlyprintedbooks.co.uk\/search?q=%22Medical%20ethics%20\u0026amp;%20professional%20conduct%20%5BMBDC%5D%22\"\u003eMBDC\u003c\/a\u003e], Medical \u0026amp; healthcare law [\u003ca title=\"See our other books on Medical \u0026amp; healthcare law\" href=\"https:\/\/freshlyprintedbooks.co.uk\/search?q=%22Medical%20\u0026amp;%20healthcare%20law%20%5BLNTM%5D%22\"\u003eLNTM\u003c\/a\u003e], Intellectual property law [\u003ca title=\"See our other books on Intellectual property law\" href=\"https:\/\/freshlyprintedbooks.co.uk\/search?q=%22Intellectual%20property%20law%20%5BLNR%5D%22\"\u003eLNR\u003c\/a\u003e], Comparative law [\u003ca title=\"See our other books on Comparative law\" href=\"https:\/\/freshlyprintedbooks.co.uk\/search?q=%22Comparative%20law%20%5BLAM%5D%22\"\u003eLAM\u003c\/a\u003e]\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\u003c\/font\u003e","brand":"Cambridge University Press","offers":[{"title":"Default Title","offer_id":46004809957656,"sku":"9781108426640","price":79.99,"currency_code":"GBP","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0730\/2037\/5320\/products\/9781108426640i_f7f4df93-e5d1-4dd8-a759-84b7c024f015.jpg?v=1696695095","url":"https:\/\/freshlyprintedbooks.co.uk\/products\/sharing-linked-data-for-health-research-toward-better-decision-making-hardback-9781108426640","provider":"Freshly Printed Books","version":"1.0","type":"link"}