{"product_id":"crucible-of-the-incurable-facing-als-hardback-9781501778315","title":"Crucible of the Incurable; Facing ALS (Hardback) 9781501778315","description":"\u003cfont face=\"Georgia\"\u003e\r\n\u003cp\u003e\u003cfont size=\"6\"\u003eCrucible of the Incurable\u003c\/font\u003e\u003cbr\u003e\r\n\u003cfont size=\"5\"\u003eFacing ALS\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\r\n\r\n\u003cp\u003e\u003cfont size=\"4\"\u003eAnthony Stavrianakis (Author)\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e9781501778315\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003eHardback, published 15 November 2024\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e248 pages\u003cbr\u003e22.9 x 15.2 x 2.1 cm, 0.907 kg\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\r\n\r\n\r\n\u003cp align=\"justify\"\u003e\u003cstrong\u003e\u003cfont size=\"3\"\u003e\u003cp\u003e\u003cb\u003e\u003ci\u003eCrucible of the Incurable\u003c\/i\u003e\u003c\/b\u003e\u003cb\u003e concerns how people face life with amyotrophic lateral sclerosis (ALS). \u003c\/b\u003eAnthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred percent fatal, neuromuscular illness, whose most common duration is between two and five years. How do people diagnosed with ALS continue to \"live as well as possible, for as long as possible\" in accordance with the normative work at the heart of outpatient ALS care?\u003ci\u003e Crucible of the Incurable\u003c\/i\u003e shows how those touched by the situation of a person living with ALS bear this problem and this task. Given the sense of certitude around the diagnosis, given past experiences of those aware of its usual progression, and given the uncertainty of the disease's cause and its progression for each specific person; how then do people orient themselves to the experience of life with this illness, how to support those who are confronted with it, and how to provide aid or solace.\u003c\/p\u003e\u003c\/font\u003e\u003c\/strong\u003e\u003c\/p\u003e\r\n\r\n\u003cp\u003e\u003cfont size=\"3\"\u003e\u003cp\u003eOn Linking Knowledge and Care for ALS\u003cbr\u003e The Emergence of a Diagnostic Certitude\u003cbr\u003e Nosological Indeterminations\u003cbr\u003e Multidisciplinary ALS Care\u003cbr\u003e ALS Clinic\u003cbr\u003e Palliative Care Clinic\u003cbr\u003e Epistles to Ones\u003cbr\u003e Plea for a Blessing\u003cbr\u003e Advocate\u003cbr\u003e The Incurable and The Possible\u003c\/p\u003e\u003c\/font\u003e\u003c\/p\u003e\r\n\r\n\r\n\r\n\r\n\u003c\/font\u003e","brand":"Cornell University Press","offers":[{"title":"Brand New","offer_id":52610534965528,"sku":"9781501778315","price":86.76,"currency_code":"GBP","in_stock":true}],"url":"https:\/\/freshlyprintedbooks.co.uk\/products\/crucible-of-the-incurable-facing-als-hardback-9781501778315","provider":"Freshly Printed Books","version":"1.0","type":"link"}